I have a query regarding consumer access for patient portals - we are seeing the need for multiple patient portals (or multiple project wanting access to a patient portal) in the Northern Region. We are wanting to develop access standards for the region (ideally that line up nationally!) I am not aware of any existing standards nationally. We are particularly interested in the details for paediatric consumers, and proxy access (and all the gnarly bits that go along with e.g. mental health and sexual health notes, sensitive results etc).
So to summarise, I have two questions:
Are there national standards in existence (or a WIP for Hira @BeckyGeorge ?)
If there are no national standards, has anyone’s DHB or organisation created access rules/standards that they would be happy to share?
Hi Melanie, we are developing national set of information sharing rules for Hira. These talk to outcome requirements for access, consent and delegation around sharing information, they don’t talk to the technical requirements in detail. We have nearly finished them.
My other thought is how providers such PHOs are doing it now for their portals?..I have access to my children’s account - validated by the registration to the practice.
I would suggest that consent and delegation is distinctly different from authorisation for access.
I don’t mind - I did consider posting on HiNZ but then thought I might get some technically-minded people picking apart any terminology I mis-used
Broader than this question, the northern region is working on a IDAM strategy at the moment and I think the more connected we are with what is happening/has happened nationally, the better!
hi,
I’d have thought most standards would focus on integration and data elements rather than patient portal, although patient portal standards is very interesting and important.
Perhaps the different viewpoints of health consumer needs (consulting a patient experience type role), privacy needs, patient education viewpoint, clinician viewpoint combine to give some guidance considerations.
I would have guessed from a health consumer perspective their preference may be one patient portal with all information presented.
Hi Melanie and Becky. Please excuse any errors in posting this note - I am new to the Forum!
The topic of this thread is really important as I am still waiting for on-line access to my own EHRs!
I review a variety of EHR info sources across Health IT and I thought this one would be of interest:
It seems health systems around the world are struggling to achieve optimal use of IT for all areas.
There is a clear lack of Enterprise Architecture and Business Process Analysis to guide IT design.
If anyone knows of NZ authored IT design or papers using TOGAF and BABOK please let us know!
