This paper explores the nuances of privacy considerations for people with disabilities using IoT services and provides recommendations to address privacy considerations, which can include transparency, individual control, respect for context, the need for focused collection and security.
Kia ora Eileen, I’ve completed several projects/papers on Māori and Pacific Peoples’ privacy and health (and other) data ‘sovereignty’ principles, policies and approaches. However, a recent project I was involved in, included people with disabilities as a priority group. Although it wasn’t in my remit, I noticed privacy was not being addressed for this group. Interestingly, their advocates said that many things that I’d proposed for Māori and Pacific Peoples’ applied to them also. It would have been valuable to this group to have had them included in how privacy is addressed, and how each group’s approach can inform the others.