Printing Patient Information Sheets on demand in clinic - a paper-lite approach?

Who is printing patient information leaflets on demand in an outpatient clinic setting?
If so:

  1. How is it working?
  2. What digital repository are you using to ensure the clinician can find the information to print quickly?
  3. Do you have printers in each clinic room, or does the clinician have to walk to a shared printer? If the second, is this causing any problems?

A goal of new hospital buildings is usually to be at least “paper-lite” if not “paperless”. One reason is the space that paper takes up. This includes paper information leaflets in drawers and on shelves which are given to patients.

There are some advantages to printing these leaflets on demand, including:

  • Not running out of a leaflet
  • Having the most up to date version available
  • Easier standardisation of leaflets
  • Greater ability to run your clinic out of a “generic” clinic room which does not have to be pre-stocked with specialty specific leaflets
  • Having leaflets available in a digital format will make it easier to link into delivering them electronically to patients as these systems become available and used by a greater number of patients.

Some disadvantages could be

  • Not being able to print it quickly enough to maintain clinic efficiency
  • Having to go through a more cumbersome governance approach if you want to add a new leaflet (instead of just photocopying your favourite leaflet and putting it in a drawer of your usual clinic room).

I’m interested to hear from anyone currnetly using the print on demand approach. Is there anyone who works in the newer Christchurch Outpatient Clinic building and if so, what is the system used there?

Hi Team

Is this drug information or condition information or both?

Community Clinical Pharmacists often print out drug PILS (patient information leaflets), drug interactions (for advice sake, or to query prescribed).

Avoiding duplication is always something I aim for, in a under pressure system.

We always have printers available due to the digital system not being paperless yet, soon, in the next two years, but not until all the “hurdles” of digital prescribing are ironed out or eliminated.

Great starter for 10 Damon.

Hope that’s helpful.

Kia Ora

-Shane Heswall-Kensington and Maunu Pharmacies Ltd
-Mb 027 524 0543

I use https://www.healthnavigator.org.nz/
They’ve got videos and different languages and easy language. Occasionally I print it but more often I give the weblink. Win win!

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We have a similar issue with move to new ED in Christchurch (as there is limited space to store paper forms). Similar to Ruth, I tend check patients have internet access, and if they do, then give them a www.healthinfo.org.nz card with the relevant search term written down. We still print some patient info sheets from our departmental intranet site, but there is less need for these (and it certainly adds a few minutes to the consult to do this!).

Hi Damon

Here in Paediatrics in the Waikato we operate outpatients from two locations on the Waikato campus and 4 T-hospital sites: Thames, Tokoroa, Te Kuiti and Taumaranui. We also need to print paper discharge summaries, patient info, management plans etc from the wards. There are stocks of selected pamphlets, put the standardised ones for WDHB are one A4 printed on both sides in landscape and folded into three sections. That limits what we have available, popular things run out easily and many things we need to use are not covered, or not in enough detail for some families.

We cannot assume that our whanau have suitable digital devices, data or the opportunity to remember to look things up themselves if we don’t give them printed documents. We are not naïve enough to believe that they read it all. We are probably not very good at checking that our parents and caregivers can actually read well. We do make an effort where English is a second language to get suitable materials in the correct language, where it is available.

We print patient information from selected sites to supplement the sparse selection from WDHB: Kidshealth.org.nz, DermnetNZ.org, ASCIA anaphylaxis and allergy management plans, Starship/RCH/other seizure management plans, patient info eg for oncology etc. We also use rare disease and related sites to fill in the gaps.

We don’t have a useful intranet repository, although I have been tasked with setting something up.

We have shared printers that we have to walk to, which is inefficient, particularly when there are 2 to choose from and we select the wrong one. A particular bugbear of mine is that some locations default to the Webex document repository, which I have never used. I select print, wander to the printer, nothing there, wander back and try again, this time noticing that Webex has been selected and remember to print to the correct place. Yes that is on me but since I don’t know anyone who uses the Webex document service, and we now have Teams to do everything Webex does, we should be eliminating Webex from the inventory of duplicate services we are paying for.

Lots of families expect us to email documents, even their clinical letters, which we have not been allowed to do because apparently the Russian Mafia and basement hackers have nothing better to do than intercept personal information and use it to mine Bitcoin. Yes, I know it is more likely that we might send it to the wrong address because of a spelling error.

It is in my view impossible to police the sites that staff use for patient information effectively, without locking the internet down to uselessness. The rules are recognised institutions of accepted quality and evidence based rigor. The main potential problems are with funky units or names of medicines from overseas that NZ doesn’t have (yet) or might lead to serious dosing errors. Remembering that digitally savvy consumers will be already signed up members of the international Facebook group for whatever they’ve got before they leave the carpark, we can only do so much to control the excesses or errors of ‘information’ access in an interconnected world.

The most efficient use of paper is on demand, the most efficient printing is bulk pre-orders from our service suppliers, who can almost certainly churn out each printed sheet for less than the cost per page for our standalone printers. We can’t cover everything we need with pre-printed materials however so most cases we will use a mix.

Cheers

David

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We seem to have several national or subnational platforms here, all trying to achieve something similar. Oh, and we are also trying to do this locally in many places. Is there a reason that we are re-inventing the wheel so furiously?

This would seem to be an ideal opportunity for a single national repository of patient information that people all around the country can contribute to, and for all to use. With them being printable of course.

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Interesting topic Damon.
as everyone says pro’s and cons.
I have been printing brochures (for all sorts of stuff) in GP and hospital clinics since 1990. Thats 30yrs now and I am a bit half masted about it.
Whatever the process you need the infrastructure behind the source to keep patient information current and the source then needs to be quickly easily accessible. At my hospital clinic I recently stopped printing brochures because someone leading the charge arranged racks of brochures on an alphabetised stand and that is a whole lot faster than printing them. someone else’s job to keep them current. I have always had at least one printer in my room. Two is good when one tosses its toys out of the cot but with new printer tech where you cant just plug in an identical model things got harder. There is nothing worse than having a failed script printer in a busy clinic.
Finding content when you don’t want to look beyond your PMS can be a challenge. Could be sorted I am sure but quite a job. Remembering document names when you didn’t create them can be a challenge.
so all in all it can be done but to do it properly would require quite a lot of resource.
Pointing patients to a recourse is another option but will require a sensible way to get a link to the patient.
https://www.healthinfo.org.nz/index.htm?A-Z-health-topics-P.htm
So I have to say that when the priority (in hospital) is getting a decent PMS ( we use MT32 in our clinic and are effectively paper free for 10yrs now) there are probably other places to spend precious resource.
be interested to hear what you come up with.

Would you consider creating QR codes for patients to follow rather than the onerous task of getting the URL right?

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That would be a good question for Healthnavigator and @Janine

Kia ora koutou,
Great discussion and totally agree Nathan re the need for a single national repository of trusted consumer friendly information and self-care resources. We are leading a national collaborative with partners KidsHealth and Health Info to do exactly this. You can read more about it here or share this National consumer content hub updated 10 Nov 2020.pdf (512.2 KB) with colleagues.

There is so much duplication and fragmentation across the sector in terms of quality consumer information. Printer issues aside (and there are many, I know the pain) we need to do this together with a strong focus on health literacy, equity, shared decision-making and supporting whanau to develop the self-care skills to manage more effectively at home (includes acute plans etc).

Karen, great suggestion about adding QR codes. We can investigate adding. (SNOMED, NZULM and te reo headings are also in progress)

Contact us if you’d like to be part of this important mahi as an individual, supporting organisation or potential approved content partner.
Nga mihi
Janine Bycroft

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Hi Janine. Great work on the national system you’re developing. I suspect that people are solving local problems (hence the duplication and fragmentation) that could be solved nationally but the pressure of the daily workload keeps their nose down – how to get everyone contributing to and using your national system? Thanks for the invitation to join the Hub. I’ve completed the form and hope you will find something for me to contribute.

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What we have is the legacy of dispersed, duplicative and inefficient systems arising from the Health reforms of the past as political ideology swung back and forward. There is no ideal system but the current 20 DHB arrangements have significant inefficiencies, perhaps to be partially addressed at a superstructure level in the next 3 years.

Monolithic centrally controlled systems are death to innovation, flexiblity and timely delivery of just about anything a coal face worker actually needs to do their job. Having said that 20 different DHBs solving, or not, the issue of appropriate evidence based, accurate and meaningful patient information, in the right languages is a chaotic, inefficient and inequitable result. Work such as Janine is involved with is essential to get consistency, quality and improve equity of access. Some degree of co-ordination is vital to making sense of this.

Clinicians know the material, and where to access core resources, but are better used directing their attention to clinical delivery, quality improvement and planning than editing and curating vital resources. If we choose to properly fund the delivery of information resources we may avoid spending more resource on reinventing the wheel 20 times.

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(Sorry to chip in on an NZ issue but I guess the principle is universal)

One way to outlast the relentless lava lamp churn of national and regional health organisations and policy is to publish the content openly to an independent third party, for example put the content up on GitHub in simple MarkDown text form where it is easily adapted, improved, and curated by those with an interest (and there is a mechanism for accepting contributions from those outside the organisation - the ‘Pull Request’).

Changes of national organisation can have no effect on that repository, and it’s easy for regional organisations to work together on commonly needed content. From a public ‘master’ in version control it’s very easy to ‘syndicate’ this content out to other presentation layers eg websites, apps, PDFs, locally-branded versions, etc but the core content remains the same.

Thank you Janine - what a breath of fresh air!
https://www.healthnavigator.org.nz/healthy-living/n/national-health-content-hub/
How do you feel about the prospect of an MOU with CiLN? As a collection of digitally interested and skilled clinicians, we are well placed to contribute to the effectiveness of the Hub.

This is precisely the danger that the National Health Content Hub must avoid.

While I’m not sure that GitHub is the best platform (it is a pretty scary place for the less geeky, @pacharanero!), an effective clinical (and consumer) community engagement and collaboration solution will be vital.

Me too!

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@Janine is my hero!!

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Thanks Nathan and Karen, great suggestions. We’ll be in touch.

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Great to see you making progress on this front, @Janine. I particularly liked this:

“White label content — where recipients can rebrand it as their own — will be contributed to the hub via API by approved content partners and overseen by a national editorial team to ensure principles, quality standards and equity focus are maintained,” says Bycroft.

from https://www.hinz.org.nz/news/559444/National-health-content-hub-being-created.htm