Healthcare review implications

So - DHBs are on teh way out, as are the 30 something PHOs. We’re all gonna become one big healthcare system, but in 4 regions, unified under Health NZ amd a second organization called “Maori health”
From an IT perspective, this has the potienal to mean significant change. A radical new way of workign and a new organizatoin responsible for the health of the nation which require new IT tools and better quality data about what they are managing. If we adopt the unified IT to reflect a unified organization approach, it woudl be a significant change from the current NHIP plans to make teh best out of teh available morass of products and vendors.

Or this has the potential to be “carry on regardless”, the 4 “regions” becoming suspiciously like the current 4 IT regions.

I know which I’d prefer- what do folks think of the opportunities and threats from yesterdays (21/4/21) announcement by Minister Little?
Mat

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Yes, the HIT aspect of the changes is exciting and daunting. For me, however, this indicates NHIP is more relevant than ever . . .and, for me, a unified IT like N Ireland would be a disaster: https://www.beckershospitalreview.com/ehrs/northern-ireland-selects-epic-for-374m-ehr-implementation.html . . .a for-profit EHR company has a monopoly on the bulk of health data for an entire country. Our NZ experience should be a dire warning: MedTech having the predominant monopoly on primary care data until very recently, stifled innovation. While MedTech should, appropriately, be lauded for being one of the first functional EHRs in the world, the lack of a robust market-place lead to stagnation and frustration.

Rather, we want a rich, diverse HIT ecosystem, where there is innovation and capacity for multiple datasets to intersect (e.g., social services, education, and other systems that impact health through social determinants of health), with the whole ecosystem being robustly governed and regulated through our democratic, not-for-profit governmental structures (e.g., PHARMAC-like).

The emergency of the Māori Health Authority, with (hopefully legislated), actual authority means we can have confidence that data governance will be core to our national HIT approach, drawing on Te Mana Rauranga principles.

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Yep big changes or more of the same.
It is up to us to make it the former.
We are half the size of Kaiser Permanente citizens wise and we cant continue to be all doing our own things round NZ.
at the end of the day as they say the devil will be in the detail but as thought leaders we have a responsibility to lead not just follow

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I don’t see this change making a difference to the National health I.T. roadmap. The intention was always to regionalise first, then amalgamate into a single, National shared e-Health record system. If anything, this new “announcement” should ensure this happens sooner, rather than later. . . .

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THE key issue is whether we and those driving the change have the required breadth of vision.

Let’s do a quick SWOT analysis.

Strengths
This change is likely what we need. The DHB system is overtly dysfunctional and past its sell-by date, as shown by the heterogeneity of practice (and level of innovation) in adjacent DHBs. If we can make a truly national healthcare system (think of the establishment of the NHS in the UK all those years ago) that delivers and is loved and respected, we have the potential to deliver quality care to everyone, particularly those who are currently disadvantaged. Maori Health is tasked to keep us honest, a good thing. To their credit, the architects of this bold new plan have articulated the need for good epidemiology; and we already have a recent history of government listening to epidemiologists—with good results.

Weaknesses
It’s very easy to mouth the words “patient centric” and “clinically focussed” and “preventive medicine” but actually quite difficult to articulate design that will bring these into being. It’s also easy to overreach, and try to get healthcare to do things it’ll never do, because the main driver for the development of non-communicable diseases will forever be out of clinicians’ hands—the flow of commodities like alcohol and salt and nicotine and high-energy-density foods into communities. Health is widely acknowledged to be a ‘wicked’ problem, although a lot of this may be related to bad design, poor communication, failure to disseminate successful innovation, and bureaucratic inertia.

Opportunities
The key opportunity here is to simplify. For those marinated in relational terminology, we can build simple systems around a single source of truth, in third normal form. We have the potential to prevent duplication of work—something that I see clinically every day. We however need to do several things.

We need to re-jig the underlying structures so that they are data-centric and not document-centric, as they largely are at present. From a clinical perspective, we need problem lists that work—and that are reusable, so that when someone comes back to the clinician, we don’t go through the tedium of documenting things yet again. We can instead review the problems and ask how things have changed. But more than this, we need UIs that make it trivial to do things like make causal associations, and drill down to the evidence supporting and refuting the problem, and work together on problems. We need simple, reliable, robust prescribing, a key source of error and harm. We need seamless integration between supporting services in and out of hospital.

Another opportunity is to disseminate things that work. I know of two hospitals side-by-side where one is at EMRAM 6 and the other, EMRAM 3. I know that pretty much everyone at the former is happy to share how they’ve got there—including sharing code, even sharing licences—but the other is stubbornly going its own way. With luck, this sort of silliness will cease.

A further opportunity is to institute continuous quality improvement—to listen to Deming. We can build a system where clinicians understand how to use simple measures like control charts to re-engineer systems that work.

How will we spot success? We will find:

  • We have more time to think.
  • Cut and paste has disappeared, as has “copying others’ work”. There is one source of truth.
  • We have more time to talk to patients.
  • We spend less time in front of the computer.
  • Things just work—within and even more importantly, across regions. Errors become less frequent
  • Everyone is happier in their work.
  • Crazy ideas like targets, league tables, annual performance reviews and traffic light systems are a thing of the past. (A predictor of success will be how many of those reading this post understand why all of these are bad!)

Threats
National are already whining, and might therefore try to pull back before any useful change is made, but they are still in disarray, so it’s very possible they won’t be able to wreck things. Perhaps they’ll even come to the party?

A bigger threat is likely the phrase “data driven”: it will be a disaster if some bright bugger decides that “we need to let the data speak”, rather than taking a scientific approach where we use the data to test, refute and refine our models.

Another threat is failure to appreciate the need for evolutionary change, growing the small things that work in a way that supports a bigger long-term vision.

As I see it, a further, pernicious threat is that those who build the new and revised systems we require will make them too complex. There are several ways this can fall over:

  • We’ve already seen the massive, £14 billion pounds wasted stuffup that was NPfIT; Obamacare blew $29bn on systems that overburden clinicians with extra administrative duties to the extent that they have to employ new people to follow them around and capture data; cut and paste is rampant in many such systems. These failures all represent excessive complexity combined with a failure to understand the basics of how good medicine is done.
  • An insidious danger is “everything as an app”. This represents a failure to impose a coherent structure on the data—something you can’t fix with FHIR (I’m happy to explain why).
  • Some current trends are inimical to the creation of good systems that persist. These include inadequate documentation (a widespread issue); unthinking use of XML and some OO structures that are in direct conflict with 3NF; a failure to establish simple, consistent data dictionaries; and failures of code transparency. Those who have built good databases and written good code all understand how easy it is to tack on another module or table, and how difficult it is to normalise properly and refactor—or better still, get the initial design right so all of this is unnecessary!
  • If clinicians are disempowered and put upon, they will break things, one way or another. They need to be empowered—but this doesn’t mean listening to the clinician with the loudest voice.
  • If all participants don’t understand, some of them will break it.

Another threat is that the DHBs will still maintain their silos, while paying lip service to change. Stifling bureaucracy may hang in there, and prevent dissemination of good ideas using all sorts of stalling tactics. Clinicians and managers need to gain a new found respect for one another, and work together with IT experts to build more functional systems that just work.

As I’ve suggested already, the greatest threat is a paucity of vision.

My 2c, Dr Jo.

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From my perspective (I’m a domain architect in a shared services agency delivering digital capability to several DHBs) the intent of this is fantastic, but like all things it will come down to the execution and leadership. My view on execution is this would be a great opportunity to raise the profile of health informatics as a leadership arm within the new organisation.

This might sound like I’m touting my own agenda, but I’m not (we’re some way from a non-clinical IT architect being embraced as a health informatics lead)… I’m trying to promote the notion of informatics leads being tasked with helping specialties gaining alignment (within each speciality) to a unified strategic plan which covers the people, process, and digital transformation needed to achieve to deliver the objectives of now and the future.

I’d propose each individual specialty head owns their strategic plan (one for nursing, one for cardiology, one for maternity, etc.), but the informatics leads are the ones who help ensure it has a brave enough digital transformation focus (upskilling, business change, care model changes, etc), a broad enough focus (end to end from community / primary through hospital and back to in-home care with prevention and wellness), and aligns with the other plans. (Architects play a role here guiding in the technology / integration / data domains).

This is based on a combination of things I’ve seen in my experience in healthcare… I have seen from CDHB a great document ‘Strategic Plan: Nursing with Information Technology’ on the positive side. I embrace the idea of IT teams being the enablers for service led plans for capability transformation. Also seeing what worked with Northern DHBs with clinical led change (Counties Manukau clinical change capability sounded excellent, Waitemata capability)… I’d propose to extend that model further into strategy and leadership.

On the not-so-positive side, I worked at a DHB which was a merger of two smaller DHBs (and don’t get me wrong, I loved this DHB and they were excellent, but) the multiple patient administration systems together with clinicians at one location who sometimes didn’t agree with the corresponding clinical practices at the other location spoke to me of a merger that could have gone better. I’ve also seen a DHB or two implement poorly executed business change for technology implementations and clinicians not-embrace the new solutions (/ ignore them out-right). We can’t keep doing these things…

In summary, I believe informatics leads are the right people to drive the transformation. You have cross-domain boundaries, you are brave, you are inquisitive, you embrace change, you are collaborative and good at listening, you are passionate, you are respectful. I would love to see this excellent group of informatics leads embraced as the change agent leadership team, recognised and empowered officially within the new organisation.

Thanks for asking the question Mat.

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Hi,

Some interesting points raised above.
At a strategic level I think the announced changes are really positive for digital health, and they present a huge opportunity for us to be involved in leading this change. There will be some difficult challenges to work through though - the conflict between national standardisation and the ability to innovate and evolve is a key one in my mind - we do need to avoid the risk of us all consolidating to the lowest common denominator.
Interesting times, and I look forward to the conversations and work ahead.
Cheers,
Steve

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That was ‘comprehensive’, not quick Jo! You make several solid points which are worthy of contemplation.

I share this concern. We need standardisation that enhances innovation rather than stifles it. I’m not smart enough to see an alternative to agreed clinical data standards coupled with an architecture which removes data from applications - i.e. OpenEHR. The Health Secretary of England seems to agree:

It would take considerable ‘vision’ for NZ to go down that path at the moment, but I suspect that will change over time as the alternative of continuing as we are our unholy soup of partially connected (with considerable effort) clinical databases growing exponentially becomes untenable.

Having done my Master’s thesis on the lasting impacts locally of the Primary Healthcare reforms from the early 2000s I would be advocating for a strong and transparent governance framework with a focus on predefined outcomes for clinicians and patients from any given project.

While I love everyone’s optimism without such strong governance, the work on my thesis and training during the RHA era raises visions of the whole thing descending into a cynical rebadging of the status quo and dodgy backroom deals inflicted onto clinicians.

To my mind the Maori Health Agency and the focus on equity will be key. As Health Informaticians we will need to get behind such governance structures but also need to be generally pushier but in a nice way, because we are nice people and I would hate to lose that.

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This probably is possible, but not they way that they will try to do it here in the UK. Here they will try to build a comprehensive ‘everything’ data platform, get bogged down in development, make it too complex, and spend billions on the predictable failure.

If you wanted to do it differently in NZ, you could succeed if you build it a little bit at a time, earning trust and Install Base. Start with something like demographics behind a trusted read/write API. Get that working across a range of healthcare settings. Then add in something more clinical like Allergies. Then Alerts. Then booking.

Not a big bang, but a gradual release of new features.

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I think that there is an opportunity for us to work together to advocate strongly for Clinical Informatics to be strengthened and established as a key part of the new system and structures.

Perhaps a subgroup of us should start working on this proactively rather than waiting for it to be done to us?

Steve

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Good to see such robust discussion and thoughtful replies, many thanks!
I really like Steve’s point about proactively working to make sure that this is not a wasted opportunity, and that health infomaticians have an important place at the table with regards to shaping this future.

Any suggestions on how to make this happen? My thoughts/ ramblings below…

Right now I don’t feel like I know enough about what the future looks like or who to talk to yet (the CEO of Health NZ is probably several months away, the regions are yet to be defined, and I’m not sure what the underpinning executive structures will loook like yet)

I think it’s also prudent to try and work out what we want before asking for it (!)

The vision articulated by @david.vink seems prudent, and probably most consitent with the NHIP as it currently stands and a single healthcare body - i.e. a strategic plan which supports a suite of products and workstreams which each fall within a given area or specialty. That’s got a lot of potential - although the mihi required to herd the cats from any given specialty onto a set workflow is likely to need either very deft diplomacy, or brutal dictatorship. (!)

Should we try to convene a meeting of some of us with Shayne Hunter and some clever MoH bods as part of the way forwards? The purpose of such a meeting woudl be something along the line of:

  1. discover what is known about the imlications of the announcement on the NHIP.
  2. signal our strong belief and desire to be part of the solution, and to make the most of this opportunity. (you’ hope they know already, but squeaky wheel and all that)
  3. Plan future meetings and process which would take what concrete directions and directives we have about the new structure thusfar, and turn them into specifics to meet the need and vision - while keeping us at the table.

Thoughts?
Mat

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The Telehealth Leadership Group has had great conversations with the transition unit. It would probably be worth making contact there or better still get a webinar going with Stephen McKernan as guest? They seem genuinely interested and in my limited discussions with them I have pointed them in the direction of CiLN.

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Some good conversations here and great to see the highlighting of good clinical leadership as essential. Im writing my bit for the CiLN newsletter right now and the words that keep playing in my head across so much that has played out over the past 6 weeks is equity and partnership. Im thrilled to see the Māori Health Authority as this is about partnership to ensure individualisation of inputs to achieve equitable outcomes.
Although Im a super geek who loves to go down rabbit holes of possibilities, I dont believe this is the right time for too much attention in this area, as we run the risk of paralysis by analysis and missing a great opportunity to be part of shaping the structure rather than having it shaped for us. We need to show ourselves as partners in leadership and the value add of having us at the table from the beginning.
The questions I am asking

  • What are our key messages as a Clinical Leadership Group we want heard (see CiLN position paper)
    -Who do we need to partner with to strengthen this voice?
    -How do we articulate clearly and simply the added value of Clinical Informatics Leadership?
    -Knowing the implementation team will be looking for already established models of good practise, how do we use united knowledge of CiLN and other partners to gather and promote good practise in clinical informatics as a partner, and the value add within the health system?
    How do we show the value add of clinical informatics in achieving health equity outcomes?

My monday musings…

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Yeah Im going to suggest a webinar with Emily Mailes and also want to see what HiNZ has lined up in this space…

Great musings, love it!

What an opportunity for unification - my concern would be around innovation - hard to innovate with a really big system

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